Monday, August 18, 2008

The PLU - Take 2

So, yeah, not so much with the sleeping . . .

We were all up most of the night for a variety of reasons.

I think the wife and I have all the basic concepts down now - it's just a matter of getting into the routine - which is pretty much going to be impossible for us until we get everyone home for a couple of days.

And the whole cathing thing can be extremely difficult at times. The wife has done it successfully once so far and I have done it twice - we have both given up in exasperation at least once and had the nursing staff take over. We know it is going to get easier with time but right now it is a pretty harrowing experience to go through three times a day.

So here is our current status:

Sleep deprived. Tired of being at the hospital. Hoping that we can all go home today.

I have a mountain of phone calls to make today regarding insurance and SSI and CCS and all manner of programs and organizations with various acronyms that all spell out C-A-N Y-O-U H-E-L-P U-S? Not to mention putting in a full day at the office.

The crew from Annabelle's Circle has been at the house all weekend and we are eager to get home and see what they have accomplished. How do you thank people for such sacrifice? We are just so grateful.

We also have a house full of family sleeping in every bed and spare patch of floor space. We are so thankful to have supportive and helpful family around us at a time like this.

Today is totally up in the air. We generally believe that Annie is going home later today though we don't know what hoops they want mom and dad to jump through to make that happen. I fully expect to be called away from the office at any moment today to meet with Doctors and case workers to go over some nitty gritty before they are willing to let us cut the final wristbands off and walk out into the fresh air of freedom.

"Little Annie, believe me, it does get better. The whole world does not consist of the NICU where people poke and prod you at all hours. There is this restful and safe place called home and an unimaginably big and wonderful place called outside that you will love and spend the rest of your life exploring!"

Thank you for your continued prayers and support. We will keep you posted! :-)

1 comment:

Michelle said...

The cathing does get easier, you just have to do it a bunch of times to get used to it. And it IS harder if you are tired. Hang in there. Having a set schedule will help too. Her body will get used to it and know its time to be cathed.

Michelle & Emily
in Buckley