Wednesday, May 11, 2011

Medical Update: Speech Therapy: Part 3: Thoughts and Feelings

Here is what we know:

- Annie is delayed in communication.
- Annie is 33 months old.
- We are going to get Annie the help she needs and I don't see any reason why this might impact her schooling. When she is 22 and graduating from college, no one is going to give a crap that she needed speech therapy at 2 years of age.
- Annie shows some symptoms that, with a typical child, would raise concerns concerning autism
- Annie is not a typical child which throws the autistic symptoms into question
- We are in the process of having Annie fully evaluated in terms of her cognitive abilities

Here is how I feel about it:

I have not watched every episode of Lost but I have seen a couple of seasons. On the island, there is a black smoke that wisps around. Weird, huh? Smoke is just smoke. As the saying goes, "Where there is smoke, there is fire" but in medicine, smoke symptoms do not necessarily tell you what type of fire condition is present. More testing is necessary.

Until that smoke KICKS YOUR ASS a few times. Smoke is no longer just smoke - smoke becomes a thing to be feared - it's not just a wisp to be waved away - it's a THING that has and can rock your world.

I am angry. I am angry at God. I know we don't have a diagnosis and I am trying very hard not to let a concern become a condition in my head - but it is hard.

At last count, we have had over two hundred doctor's appointment in the last three years and we have come into contact with all sorts of children with all sorts of conditions. The wife and I have often said, "mental disability would be harder than physical disability".

I believe it was Reynolds Price in his book A Whole New Life: An Illness and a Healing that asked God "How much more suffering must I go through?" God's answer?: "More".

Well right now, God can suck it.

And that's coming from someone who has to teach a class at church this coming Sunday morning . . .

4 comments:

Michelle said...

Do you think God does NOT know your anguish? He certainly knows yours as well as mine. When I prayed for foster children and God healed them I often asked, "Why not heal my son of the liver disease?" After many moons of sulking and feeling bad I stopped and took a little breather. And then, one of a few times in my life I really KNOW God was talking to me, He told me that I needed to be concerned for my son's heart, not his liver. He has no heart disease so I understood that I was to share Jesus with him, teach him, guide him and introduce his heart to the God I serve.
We always want our children to be like everyone else, but sometimes God has a different plan. I am continually facing that with Emily and Grace, and praying that God will touch my heart so that I can touch theirs.

Hugs from here and praying God will touch your heart too.

Michelle & girls (and boys)

Holly Linden said...

Thank you Michelle.

matt said...

I don't doubt that god understands - I am beginning to doubt that God cares . . .

I know there is a God - I am no longer certain that he is kind.

Rachel Clear @ Clearly Speaking said...

Matt (and Holly), I am just aching for you guys. Aching. And Matt, I totally understand your feelings. Totally. I learned very early on in life that kindness wasn't exactly God's biggest quality, or even hardly a quality at all. It all makes very little sense, and I am so sorry.

I also believe there IS a God, but I've never kidded myself that He was running around orchestrating a happy and peaceful life for any of us. And that knowlege SUCKS. It sucks the wind right out of you, doesn't it? It is nearly impossible to try to lean on a God whom you don't feel is kind, but if you can... do. And lean on each other. And write about it. And be angry. Or sad. And keep being an incredible dad to Annie.

I will be praying for you guys. I'm so sorry you're having to even go through this sort of fear.