Next up was Urology. This is one of the disciplines that is causing us the most anxiety right now. From just about the day Annie was born, we have been encouraged to start cathing her. We have been resistant for a couple of reasons: 1) When pressed, the docs have always admitted that it was not "medically necessary" and 2) We had enough to contend with already.
Which brings me to a whole side note: I want Annabelle to progress in her development at the same pace that typical children do. In other words, if kids start walking at 12 months, i want Annie to have her first set of wheel at 12 months. If kids start potty training at 2 years, I figure we will deal with cathing (if necessary) at the same age.
Of course, all this is subject to medical necessities etc.
It hasn't been easy to stand up to the docs who are such strong advocates of cathing but every step of the way, the wife and I have taken all the available info and made the decision we thought was right for us and our family.
The neurologist came in and confirmed that everything on the ultrasounds "looked great". Kidneys, bladder, the whole works is growing and developing right on schedule. The docs reminded us that he thinks cathing is inevitable but that it was not medically necessary right now.
We decided to revisit the issue at the next SD Clinic in August.
"Well, I'm the last one you have to see today so you guys are free to go", said the doc.
That's when I realized that some of the disciplines had been doubling and tripling up. Instead of 3 Therapy appointments, all three came in at the same time etc.
We were done at 4pm having been given nothing but good news all day!
As the door shut behind the doc, the wife burst into tears out of sheer relief.
We had run the gauntlet and emerged triumphant!
(Picture an oncologist telling a patient that the good news is they got all the cancer and everything looks great - see you in 6 months!)
(to be continued)
3 comments:
Aaaaaaaaaaawwwwwwwwwwwsome!
We didn't have to cath Emily till she started having infections. The tests showed she wasn't emptying all the way. I think she was about 5.
When the subject of cathing comes up again ask about the Mitrofanoff bladder augmentation. We did that when Emily was 9. Once completed it is SO easy to cath. Even Annabelle can learn to do it. So easy! I wouldn't think there is any reason not to do it if cathing becomes necessary.
Michelle
"the wife burst into tears out of sheer relief"
Amen!
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