Wednesday, June 9, 2010

Why Don't You Just Stab Me in the Heart . . .

LINK

Teaser:

Me: "Why do you have a shunt?"

Esther-Faith: "It helps my brain work right."

Me: "But why?"

Esther-Faith: "Because I have hydrocephalus."

Me: "Oh. Do you know what that is?"

Esther-Faith: "It is why I have a shunt."

Me: "Do you know what caused the hydrocephalus?"

Esther-Faith: (shaking her head "no" as she sucked the juice out of the top of another piece of broccoli)

Me: "You were born with Spina Bifida."

Esther-Faith: "No I wasn't. Spina Bifida is a castle."

Me: "It is?"

2 comments:

Rachel Clear said...

Wow.

So I have a question. I've been reading that website a bit, and I'm curious if the same family has several kids with Spina Bifida, or do several different people contribute to the posts?

matt said...

That site is a collaboration of mom's who all have children with Spina Bifida. I believe it grew out of the "Spina Bifida Kids" community at Babycenter.com