6:59 - Did I say "Room" 153?
Just when you think you have the system wired . . . .
When we were here in January, we spent the night in the wing of a hospital where we had a private room, bathroom and a shared balcony . . . *ahem*
This go-round we are in a room with three beds - one of which is vacant. The bathroom is waaaaay down the hall.
The other family seems like one that we would get along with but they are eating dinner in their corner of the room while we all benignly eye each other . . . sizing each other up . . .
Fortunately, I brought the big guns . . . chocolate chip and oatmeal raisin cookies. They are for the nurses station but I think we will take care of our room mates first . . .
Annie is still sleeping soundly although she opens her eyes from time to time and groggily looks around. We will all feel better once she is awake enough to nurse.
Your continued prayers are appreciated!
5:58 -Room 153
I got to go into recovery and be there when Annie opened her eyes for the first time. All the surgery stuff aside, the thing that hurts my heart the most is the thought that my little girl would experience fear and anxiety when she wakes up groggy in a strange place. So it was a real blessing for me to be there.
The wife is in recovery for the duration until we get moved to our room - #153.
Updates to follow . . .
5:45 - Recovery
The wife is in the recovery room with the wee one. Mom's get to go first because, well, when they announce "One parent to recovery room" the wife has that "I'm going to see my baby and anyone in my way is going to get dead" look about her . . . I will sit quietly and wait . . . gladly . . .
5:08 - Post-Op Consult
As we were sitting in the Cafeteria - Holly lost in her thoughts and me lost on the Internet - who should sit down opposite us but Doc Wallace himself. "I thought I would find you guys here . . ." he said.
Here is the run-down . . .
Doc explained that the surgery went faster than expected because he had an excellent team helping him.
They were able to get Annie-Lu's feet to "almost" a 90 degree angle. They are still pointed down somewhat but they are most definitely better than they were.
The doc explained that once they got "in there" they discovered that Annie has some pretty significant structural deformities. As he described it, there is a certain sort of "chicken and egg" scenario . . . Was the casting not totally successful because her bones are malformed and fused together? Or did the casting process itself exacerbate the malformations and fusing? There is no way to tell.
I asked if she would eventually be able to wear normal shoes and he assured me that she would.
I asked the doc if he anticipated future surgeries and he said only if her feet start to bend or twist in the future but that would most likely be many years down the road if at all . . .
So now what? We wait some more . . .
When people are put under, the pain from the surgery is what prompts the body to wake up. Since it seems that Annabelle probably doesn't have feeling in her feet, there is no reason for her to wake up. She's going to get her money's worth from all those good drugs . . .
They expect her to wake up around 5:45 or so at which time we will be allowed into recovery one at a time to check on her . . .
Then it is off to our room for the night. . .
Updates to follow . . .
4:38 - Grasping at Straws . . . err . . . Snack Food . . .
The worst part of all the waiting is the overwhelming feeling you have to JUST DO SOMETHING.
You want to do something constructive . . . something to help . . . but, of course, there is NOTHING YOU CAN DO BUT WAIT.
So you go to the cafeteria and you get some lunch. . .
Then you check your e-mail. . .
Then you read some blogs. . .
Then you update your own blog. . .
Then you chat a little . . .
Then you are left with nothing to do but wait . . .
There is nothing to read . . .
Nothing to talk about . . .
You're not hungry so there is no need for more food . . . and yet . . .
YOU MUST DO SOMETHING . . .
So you start to look around for something to do and you start to think . . .
I COULD TOTALLY EAT ALL THOSE CHEETOS . . . THAT'S SOMETHING I COULD DO! . . .
Ugggh . . .
Good thing the surgery is almost complete . . .
4:18 - Update
I just went up to check on the progress. The nurse called back to the OR and the report came that they are closing her up and preparing to cast her legs. We are relieved that the surgery will only end up being 2 1/2 hours as opposed to the 3-4 hours they had predicted.
Of course, the $64k question is, "Why?"
We should get called up for our post-op review with the doc around 5pm. Then we probably have a hour in recovery before we head to our room for the night.
Updates to follow.
Your continued prayers are appreciated!
2:45 - Surgery
Well we finally got into surgery around 2:30pm. It has been a long haul for the wee-one. Despite moments of tired, hungry fussiness she was a real trooper as usual and she smiled and giggled at the nurse who carried her through the OR doors.
And no, it doesn't get easier - you just learn how to deal with it better . . .
One of the low points for me was when the surgeon was explaining the procedure to us. First, a little medical stuff:
Your muscles are attached to your bones by ligaments and tendons. When your muscle contracts, it pulls on that connecting tissue which moves your skeleton. In Annabelle's case, her feet are positioned the way they are because the muscles and tendons are continuously pulling in one direction. It isn't because the muscle is contracting. It's because her skeleton is growing faster than the muscles and tendons in her legs and feet which should be keeping pace. Basically, the muscles are acting like pieces of rope that are too short. There are two basic ways to solve this issue.
First off, the doctor can go in and do a sort of lengthening procedure (adding a little more rope). This would take the pressure off her feet and allow them to be positioned properly. Unfortunately, this would be a temporary fix in Annie's case as her muscles and tendons most likely will not keep pace with the growth of her bones in the future and we will find ourselves in the same position months or years down the road.
The other option is sort of like a "tendonectomy" in which the doctor goes in and just cuts the tendons where they are attached. This frees the feet to move and grow with a much smaller incidence of recurrence. This is the approach they are taking with Annie today. Naturally, the docs are intent on preserving everything they can and yet still accomplishing the goal.
Ever since this saga began, we have lived a dichotomy between being prayerful and hopeful and yet accepting reality as it comes. It's not easy.
We are just now starting to consider (accept is not a word I am comfortable with) what life will be like with the likely possibility of a wheelchair in our little family. Its not something that we are capable of having a long drawn out discussion about yet - we just sort of mention little snippets in passing . . . and then get back to praying and hoping.
Today feels like a big push in the wheelchair direction.
It's okay. We're okay. It's just one of those things that we are gradually coming to grips with.
The surgery should last 3-4 hours which means Annie should be out by 5:30-6:30pm.
I plan on checking in with the docs around 4:30.
We will keep everyone posted - your prayers are coveted and appreciated!
11:54 - Check-In to the 3rd Degree
General Surgical check-in at 11am (ie. "pay-up") - done (no toy with $250 purchase this time).
Surgical suites check-in at 11:15 (ie: vital signs . . . here's your gown) - done
Pre-op Check-in at 11:30 (ie: soooo, you say you're here for an operation?? Here's the general plan)
Now in the surgical waiting room waiting for the pre-op consult with the docs and the big hand-off . . . .
Everything has gone better than planned today - Annie woke up at 6:15 and fed until 7am (the cut-off). Then she drank Pedialyte (baby Gatorade) from 9:15 to 10am (the cut-off time). Every thing has just been falling into place today . . . so far so good . . .
10am - Experience
Now that we have been through this before, it is funny how different our preparation is. For instance, here are some items you would not typically think to pack that we have learned to bring:
1) Foam camping mattress: One parent is allowed to sleep in the room with Annie, the other gets booted to a conference room with a padded bench along one wall. All the "extra" parents share the same room (and) padded bench. If I don't get there in time I will be sleeping on the floor . . .
2) Fleece Bedroll: (see item #1 above)
3) 2 Pillows: Because putting my head on a hospital pillow all night sort of gives me the willies (like airplane pillows)
4) DVD's: each room is equipped with a tv/dvd player combo
5) Fresh Baked cookies for the nurses: For goodness sakes they stay up all night mothering us. It's the least we can do. It's not a bribe! It's a heartfelt gesture to those in a position to get us what we need. "potato" "potaato"
6) $250: Co-pay. We were caught unawares last time and this time we were able to budget it in.
Things you would assume you need but actually don't:
Baby Formula: The place is bursting with it and the nurses beg you to take some with you when you leave
Did I mention we are totally running ahead of schedule this morning??
6am - Heading into the office to get some work done early before going back home to pick up the girls. Have the Dawg in the office with me - going to be dropping him off at his girlfriend's this morning for a slumber party.